i strongly recommend donating to your local hemophilia foundation. i was speaking to someone there that i speak with quite often about how to use the best verbage to speak to my insurance company to get them to cover a new helmet for E, and she told me that the hemophilia foundation will buy it for us. i was so excited. i'm still so excited about it. these helmets are expensive, and at the rate evan's head is growing, he's gonna need a new one in about 6 months.
anyway, i know it's donations that help these organizations and i hope that other families feel as greatful for these things as i do. i promise to post pitures of him in his new helmet when we get it.
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We also received a free helmet from PSI http://www.uneedpsi.org/CMS400Min/about/index.aspx?id=50 along with lots of other items you can get with no cost. You might check them out. We just called and filled out a few papers. Very simple and it's well worth it. PS. they provided the same helmet "comfy cap" http://www.comfycaps.biz/ that we paid $70 for. Good luck!
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