11.18.2008

ugh...hemophilia anxiety.

so i spoke with the head nurse at the hemotology clinic yesterday and she said she'd like the have E come in for a check-up. i didn't think it was that big of a deal until i spoke to her today. apparently he needs to have blood drawn for a factor level and an inhibitor check. and then she rattled off some other tests the hemotologist may want to order, but i don't really know what they're for.

i hate, hate, hate that he has to get poked. it is pure torture to watch them put the needle in his arm. even if he doesn't cry or get fussy, i still hate it. and the worst part is having to pretend like i'm all happy and like it doesn't hurt that much. and that i am always by myself for this shit. and its hard to be strong for evan when i feel weak and vulnerable at these appointments.

so, here's hoping to only one stick and no inhibitors.

2 comments:

Jaime said...

Oh Sara, I so know how you feel. There's nothing to say to make that anxiety better other than the saying that get's me through so much...."This too shall pass." Make sure he gets LOTS of fluids just before you go in, it helps the vains pop up a little. We just had our inhibitor test a couple of weeks ago, and we have another in early December. Good luck, and I'll be thinking about ya

Stacy said...

Poor little guy (and poor Sara). I hope it goes as calmly as possible.